Reverse Rett

Organizer info
Location: Didsbury, Manchester, United Kingdom
Sports: Other
Results: 4
Result series: 1
Start lists: 1
Organizer notes
Reverse Rett is a parent driven charity founded in 2010. Our goal is a world without Rett Syndrome.

Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday and leaves them with multiple disabilities and medical complexities for life.

Most people with Rett are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopedic issues are common.

Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.

Whilst there is currently no treatment for Rett Syndrome, there is hope.

In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease.

Our research efforts are now focused on translating these research developments into treatments and cures for our children living with Rett Syndrome today.

Please join us. Our Inaugral 'Running for Change' 5K will take place on Sunday 12th June 2016 at Archerfield Walled Garden near North Berwick, Scotland. Enter now and help speed treatment and a cure for girls and women living with Rett Syndrome today.
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4 Results found
Name Race date Location Sport
Reverse Rett Worldwide Walk 2020 Reverse Rett Worldwide Walk 2020
Preliminary results
Nov 1, 2020 anywhere
United Kingdom
Paris Steele 5k for Reverse Rett 2018 Paris Steele 5k for Reverse Rett 2018
Preliminary results
Jun 9, 2018 Archerfield
United Kingdom
North Berwick Change is Possible 2017 North Berwick Change is Possible 2017
Final results
Jun 3, 2017 North Berwick
United Kingdom
Running for Change 5K Running for Change 5K
Preliminary results
Jun 12, 2016 Sutton
United Kingdom